torquill: Art-deco cougar face (Default)
The cycle continues. At least approximately.

Six years ago I went through redefinition, including a new personality and a new view of my gender.

Seven years before that I went to Burning Man for the first time, and met The Man.

Seven years before that I moved home after my chemical injury.

Seven years before that I graduated high school.

...

The period between high school and the chemical injury was tumultuous, but my health problems really started with the stress of college, and everything else -- coming home, failing to thrive, my first identity crisis, having to stop working -- came from that. That was who I was at that time, and high school me was shocked and devastated because there was no way I could have envisioned that kind of disaster out of my bright hopes for the future.

The chemical injury remade my world again, into something I probably wouldn't fully recover from, and I decided to make the most of what I had. I tried getting involved again, went back to school, and fought against my disability every step of the way. That was the way life was, and was going to be.

And then The Man happened. From the first sense of swelling immensity in my soul, to going back again because it felt like the wood might speak to me, to having its words tear my world open over, and over, and over. I let my black beast loose because The Man said so, though I was certain it was nuts. I learned to drop my armor because of what The Man said. I learned courage, and beauty, and how to discover who I was.

Without that guidance, I would never have lost my grip on my sense of self. I would never have been able to build a new person to replace it, and have the courage to embrace my reality and pin it with labels which don't fit the outside world. I spent several years just getting to know Sam, and settling into what my gender and sexuality actually mean.

And in a year, I'll be about to move away from the place I thought I would grow old, to a new place which will shape me as surely as I will shape it. A place I need, which needs me. And I will become someone I never envisioned, again. I've had a few glimpses, but I can't see what the full reality will look like.

In 2028-29, several of my older relatives will be at the end of their lives; I wonder whether that will be the next big shift, and how it will change me in ways I can't predict. Or perhaps it will be someone new, or some new direction. All I know is that I can't see there from here.

Seven years.
torquill: Art-deco cougar face (cougar)
I sit.

I don't just mean that my butt is in a chair; I mean it like the Zen masters mean it. I sit. Not every day, sometimes not for months. But whenever a crisis passes and I'm finally able to breathe freely, one of the first things I do is to sit. I'd love to be in a situation where I have the opportunity to sit every day.

I taught myself. That means what I do is not Zen; that requires a teacher, and a lot of tradition. I'm not sure what to call what I do. It's not meditation, at least in the way that most people mean it. It does give me calm, and peace of mind, and lowers my stress level. How does it do that? I just... sit.

Anyone can do it. That doesn't mean it's easy; anyone can learn to play chess, too. But it is accessible. Even the first attempt can be beneficial, and every time you do it it gets easier, even though the first few times teach you how hard it can be to simply sit.

How do you do it? )
torquill: Doctor Wilson, thoughtful (wilson)
Food for thought:

A friend posted a meme: "Smiling in photos is for neurotypicals". My reaction: heh. heheh. ah... hmm. It suddenly struck me how artificial it feels to smile in group photos, and how I rarely do so in selfies.

I have trouble meeting people's eyes. It makes me uncomfortable, unless I'm very close to them emotionally.

I've been registering sensory overload more: lights, especially flashing ones; sounds; occasionally tactile input, like the little nubbles on the purl side of hand-knit socks.

I just took a "highly sensitive" test. Reading through the items, I read "I find myself needing to withdraw during busy days,into bed or into a darkened room or any place where I can have some privacy and relief from stimulation" and thought "...you know, that would probably be a good idea on some days." I scored a 15 (14 was the threshold).

I get irritable when too many things are going on at once. I get particularly cranky in loud, chaotic environments full of people. I have to leave and find a quiet, dark place, preferably with cool air.

I don't think I'm truly "autistic", though to be perfectly honest, my aptitude for social interaction might be a combination of unusually high empathy and reading people as a survival skill. I definitely seem to have well-developed executive function, which is often lacking in people on the spectrum. But again, I wonder whether that's boosted by very effective coping skills. I know that I used to zone out and daydream a lot as a kid, sometimes for hours, and my inner life seemed much richer than the outside world. I really disliked being pulled out of it to do schoolwork or chores.

I'm not really sure how much it matters, except to help with recognizing and accepting my oddities (such as not smiling in photos), which would make me more comfortable in my skin. And maybe that's the point.
torquill: Doctor Wilson, thoughtful (wilson)
Last night I learned why I dream about dogs.

A little analysis )
torquill: Tea cures all ills (tea)
Last night I had dreams of catastrophe.

Tonight's feature )
torquill: Tea cures all ills (tea)
My head is full of ants and sandpaper.

Just let me back into the cage and everything will be fine )
torquill: Doctor Wilson, thoughtful (wilson)
I think that sitting still is the hardest skill I have ever tried to cultivate.

The art of being )
torquill: Art-deco cougar face (Default)
Every time I read R. A. MacAvoy's "Tea With The Black Dragon", it means something different for me. I have read it maybe a half dozen times, and it resonates at a different frequency based on where I am in my life. But this is the first time I feel that I really understand what underlies it.

Dust on the floor )
torquill: The magician Howl (happy things)
The vacation at Limekiln State Park was interesting. I wouldn't have missed it, though it wasn't quite what I was hoping for.

Summary )
torquill: Doctor Wilson, thoughtful (wilson)
How one plays Ingress is a reflection of one's personality.

The third team in a two-team game )
torquill: The devourer of worlds is not impressed. (devourer)
Most of the time I'm doing pretty well; I'm content, I'm pleasantly busy, I have what I need and life goes pretty smoothly. Every so often the facade slips, though, and it's like I'm waking up out of a pleasant dream, like the illusion falters for a second. It's not depression, or not primarily depression, though I do tend to get a sense of despair and hopelessness when I look at it. This is me emerging out of my safe little burrow and having a look around.

My increased pain levels, the exhaustion which is far worse than two years ago, my joint issues, the fight with Social Security, the lack of any viable treatments for my condition, reading through my medical charts and realizing how many medical professionals have basically noted down that I'm mentally unstable even as they smile to my face and say they believe me, my growing host of food sensitivities, the solvent I can't tolerate showing up in a growing number of cleaning products, reacting to my own body's estrogen production, the difficulty of procuring what I need to deal with that even when the doctor *does* believe me, the garbage fire that is my finances, all the projects I started and now can't work on because I have no energy anymore, the state of decay of the yard and the house, the horror of a Trump presidency for a poor disabled trans person...

A two-panel comic, where a dog is sitting in a room which is on fire.  In the second panel, the dog says, "This is fine."

Thank god for Ingress.
torquill: The devourer of worlds is not impressed. (devourer)
Sometimes I can be an idiot, and I end up second-guessing myself. The trick, as now, is in determining whether I was an idiot to start with, or an idiot for second-guessing.

I managed to fall off the edge of myself for the first time since August. I'm mostly done with the reconstruction work now, and it gets easier each time, but it's been a long night. Every time it happens, I panic, sheer blind fear. Last time I was at a party and couldn't run, so I retreated into my mind instead. This time I was in the car, so I ran. All it took was from Orinda to the end of Marsh Creek Road; by the time I turned around at Los Vaqueros I was mostly numb, and starting to heal the damage. I had something to eat and made tea, focusing on self-care. Now I'm well into processing, with most of Sam back in place, and some tentative framing at the edges.

I have put aside the cause to think about later. I can't think about it without stepping off the edge again, so what I'm doing is focusing on the abstract. The biggest question currently is, am I happy on my own? When I say I'm not looking for a relationship, is that just a placeholder, or does it actually mean that I would consider turning down a relationship in favor of staying single?

Oddly, I think the answer is yes. It seems consistent; when I think about the various aspects of having an intimate committed relationship, I feel like I don't really want that right now. I say oddly because I have never felt that way in my life -- this is so strange that I have to keep poking at the answers, but they don't change. I know that the positive aspects tend to smooth over the rest, at least in a good relationship, but I'm not craving those. I've said that if one dropped into my lap (as it did at least a couple of other times) I wouldn't say no, but I'm really not that interested at the moment. It feels right but my mind says wrong, and I need to iron that out.

I still feel a little wobbly internally, so I want to revisit it later; I don't know how shaky I'll be tomorrow. I want to be really solid in my understanding before I do anything else.

Everthing comes with a cost, and I suppose this is the price of having a custom-built personality.
torquill: Doctor Wilson, thoughtful (wilson)
A particular subject has worn a groove into my brain. That subject is hayeswise.

Not so much burbling as musing )
torquill: Sarah Jane Smith walking away from the TARDIS, forlorn (Sarah Jane)
This is probably going to get reposted to Tumblr, because it's personal-political.

A Chronic Fatigue/ME rally as a watershed moment )
torquill: Sarah Jane Smith walking away from the TARDIS, forlorn (Sarah Jane)
The trouble with getting involved in social justice is that you start to learn the scripts that people use.

Self-development and its impact on relationships )
torquill: Tea cures all ills (tea)
How is it that simply calling the Social Security Administration to make an appointment is enough to make me feel like crap?

Don't answer that. I know the reason... I still haven't expunged the creeping feeling that by applying for permanent disability I'm giving up and admitting failure. It doesn't matter that asking me to work a 40-hour week is equivalent to asking a paraplegic to dance a waltz -- the conditioning I've had my whole life, around work ethics and capabilities and what makes a person worthwhile, is all acting like a horrible swamp full of trash that sucks at my self esteem.

I deserve to be able to live without trading my health for money. The fact that I'm reliant on others is not through any fault of mine, and I shouldn't be ashamed of it. Most people don't have a full-time job of just keeping their bodies going.

I'll keep saying these things to myself, and maybe I won't be a complete wreck by the time my appointment comes around. If I am, well, my therapy appointment is that afternoon. We'll see on August 2.

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torquill: Art-deco cougar face (Default)
Torquill

May 2021

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