It's official

[torquill]

Today I got a formal diagnosis of Multiple Chemical Sensitivity to ethers.

I first got injured in 2000. Kaiser had no idea what to do with me. I saw Dr. Halpern for a while, and while she ordered copious tests (which all came out normal), she apparently did dick shit for documentation. When I saw Dr. Kaplan in 2005, I was only looking for a CFS diagnosis, and that's what I got.

Dr. Brown was quite mellow about it today, admitting that since there are no tests, it defaults to empirical data -- but after nearly nine years of such data, with much work having gone into pinpointing the source of the problem, he had no issue with writing a note on a prescription pad to the effect that I'm hypersensitive to certain cleaning products containing ether. He also promised to pass along a full dictation to my physician to back it up.

Let's see whether this opens any further doors for me.

Comments

[kyburg.livejournal.com]

Congratulations - and when you get that report, make many copies and keep one handy.

I'm the one allergic to ampicillin - but NOT pencillin - only chemical difference is a sulfur group, hooray.

And my 'fun' explaining that one over and over has nothing on your experience. Good on ya.